Spinal Muscular Atrophy Insights

This week's must-know community updates, latest research & events

Top Stories

Latest Research

A study on spinal muscular atrophy (SMA) focuses on patients classified as "sitters," who have some level of sitting ability. This research likely explores how SMA affects muscle strength and structure in these individuals, particularly in relation to the spinal cord's anterior horn cells, which are crucial for muscle control.

By examining structural changes in muscles and their functional impact, researchers may uncover new ways to support patients with SMA, potentially improving their quality of life. This study contributes to a broader understanding of SMA's effects and how they vary among different patient groups, which could be important for developing targeted treatments or therapies (Bieniaszewska & Gajewska, 2025).

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

Community News

Cure SMACure SMAApr 01, 2025

📢 Big news! The SSI Savings Penalty Elimination Act has been introduced in the U.S. Congress! This bipartisan bill would raise outdated SSI asset limits for the first time in decades—giving people with SMA the ability to save for emergencies and their future.

It’s time to modernize SSI and end the program’s marriage penalty!

Tell Congress to support this meaningful reform and join us in taking action today: https://buff.ly/IhDZfKA.

Spinal Muscular Atrophy UKSpinal Muscular Atrophy UKApr 01, 2025

Today marks the official 40th anniversary of SMA UK, and the day that Jennifer Macaulay passed away. Some of the team went to Jennifer’s memorial to pay their respects and recognise how far the charity has come 💖

Spinal Muscular Atrophy UK Post
SpinalMuscularAtrophy.netSpinalMuscularAtrophy.netMar 31, 2025

"I’ve found a lot of things throughout my twenty-nine years of life with SMA that can assist with my daily living and make my life that much easier."

SpinalMuscularAtrophy.net Post

Upcoming Events

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Siblings Support RecognitionOnline Spinal Muscular Atrophy UK • Stratford-upon-Avon, United Kingdom