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- Spinal Muscular Atrophy Insights
Spinal Muscular Atrophy Insights
HealthSpotlight is now AllMyHealth
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Exciting News! HealthSpotlight is now AllMyHealth Wondering why we have a brand new look? We have exciting news - HealthSpotlight has merged with and rebranded as AllMyHealth. Our shared commitment to supporting rare disease communities with trusted resources and advocacy remains as strong as ever - now under a unified name that reflects our patient-first values. We collaborate with patient support groups to create advocacy materials and amplify community news and events. Want to work with us? Find out more here | |||||||||
Exclusive ReportNew Report Release: A Guide to Nutrition for Patients with Spinal Muscular Atrophy We’re excited to share our latest in-depth report. This guide provides practical insights on how nutrition plays a vital role in spinal muscular atrophy. View the Full ReportThe report is available for free online on the AllMyHealth website. www.allmyhealth.io/reports  | |||||||||
Top StoriesPrenatal Treatment for Spinal Muscular Atrophy Researchers used a drug called risdiplam during pregnancy to prevent SMA symptoms in a child, who remains symptom-free two years after birth. This approach could change how SMA is treated. Read More →Spinraza Restores Lipid Balance in SMA Children Generally, Spinraza treatment helps improve the balance of certain fats in the spinal fluid of children with SMA, which could be beneficial for their health. Read More → | |||||||||
Latest ResearchIn a groundbreaking study by St. Jude Children's Research Hospital, researchers have administered the first prenatal treatment for spinal muscular atrophy (SMA) using the drug risdiplam. This oral medication, given before birth, has shown promising results in combating the disease's progression. The study's significance lies in its potential to alter the course of SMA, which begins its damaging effects in utero. The research team's approach to early intervention could represent a major shift in SMA management, offering hope for improved outcomes for those affected by this condition. The findings underscore the importance of prenatal care and early treatment in neurodegenerative disorders, suggesting that such strategies may be beneficial in altering the disease trajectory before symptoms manifest (Finkel et al., 2025). | |||||||||
Community News
Today is National Caregivers Day! We want to take the day to honor all of those who provide care to individuals with Spinal Muscular Atrophy. Thank you for all of the selfless work you do for the SMA community 💜🧡 
🌟 Exciting news! 🌟 We’re thrilled to be chosen as one of Lodders Solicitors LLP charities for 2025! 💙 A huge thank you to Molly Davies, their Marketing Manager, for nominating us—her personal connection to SMA makes this even more special. 
See how others manage SMA and compare experiences:  | |||||||||
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